Hypophosphatasia
is a rare inherited
metabolic (chemical) bone disorder.
On this site you will find a listing
of the various symptoms
as well as a worldwide contact
mailing list support system.
This page was last updated on: August 11, 2011
(Do you wish contact with others
regarding hypophosphatasia?
Help is just an email away.)
Canadian
Hypophosphatasia
Contact
This site will regularly be updated
as more information becomes available.
contact
Medical Director,
Metabolic Research Unit
Shriners Hosp. for Children
2001 S. Lindbergh Blvd.
St. Louis, MO
63131-3597
Tel: 314-432-3600
Fax: 314-432-2930
WELCOME WORLDWIDE
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North American Chronic Pain Association of Canada
(a self-help organization dedicated to providing support
to people in chronic pain, and to giving them assistance
in living their lives to the fullest)
Links to Pain Resources serving both
Canadians and Americans
This Hypophosphatasia
Web Site is for
informational purposes only.
For diagnosis and treatment,
one must consult
his/her physician.
American
Hypophosphatasia
Website
Two great sites
for describing
Hypophosphatasia
Enzyme Replacement Therapy
Clinical Studies
Drug Development Overview
for Rare Diseases:
A Focus on Hypophosphatasia
(HPP)
Canadian
Contact
Debbie Taillefer
PO Box 94
Lowe Farm, Manitoba
R0G 1E0
Phone (204) 303-0007