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Mission
To be a source of information, education, encouragement and support for Canadian individuals and their families affected by the metabolic bone disease "hypophosphatasia," including
interested individuals in the medical community.
Objectives
1. To provide individuals with current information, resources and contacts.
2. To provide individuals with a forum for discussion and connection with other individuals in similar circumstances.
3. To support The MAGIC Foundation in the United States and enhance the awareness of hypophosphatasia by covering issues specific to Canada.
4. To work in harmony with the Canadian Organization for Rare Disorders in raising public awareness about the existence of rare diseases in children and adults, and how they affect members of our communities and their concerns.
Functions
1. We provide information in understandable terms about hypophosphatasia, as well as a wealth of experience ranging from symptomatology to researching options available for special needs assessment in the educational system and physical therapy in Canada.
2. We provide links to various informative organizations in Canada and the U.S. as well as a worldwide contact mailing list support system.
By the 1950s, hypophosphatasia
was recognized in siblings and,
therefore, was likely inherited
(rather than due to an infection, malnutrition etc.).
Michael Whyte, MD
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